Kiyona, sister, is 5 years old with a rare genetic mutation of her Dock7 gene, along with multiple other diagnosis. After multiple medications and adjustments we are struggling to keep them under control. She also was diagnosed with lennox gastaut syndrome (LGS) years ago. December 5th sister had a 17 min long seizure at the er. It took two rounds of a rescue medicine to bring her out if it. Through this seizure her o2 tanked to the 70s and had to be suctioned because she was choking on her sali
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Kiyona, sister, is 5 years old with a rare genetic mutation of her Dock…
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TikTokgabriellereed62
Most people see a little girl smiling in these videos. What they don’t see are the seizures, the medications, the sleepless nights, and the constant worry that comes with her DOCK7 genetic mutation. But what I see is the bravest little girl I know. The girl who has more resilience than I could ever imagine. A girl who never let's anything hold her back. A 5 year old girl who smiles through the battles and has always came out stronger. We’re sharing her journey as we work toward getting her a sei
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Most people see a little girl smiling in these videos. What they don’t s…
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TikTokgabriellereed62
Kiyona, sister, is 5 years old with a rare genetic mutation of her Dock7 gene, along with multiple other diagnosis. After multiple medications and adjustments we are struggling to keep them under control. She also was diagnosed with lennox gastaut syndrome (LGS) years ago. December 5th sister had a 17 min long seizure at the er. It took two rounds of a rescue medicine to bring her out if it. Through this seizure her o2 tanked to the 70s and had to be suctioned because she was choking on her sali
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Kiyona, sister, is 5 years old with a rare genetic mutation of her Dock…
342 views2 months ago
TikTokgabriellereed62
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